Photos: Day 1 a big success!!

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The Building Begins This Weekend

Construction starts on the Thompson garage this weekend.

When:  Saturday, February 11 at 8 AM.

There will be no construction on Sunday because the rafters are not in yet. Construction will commence again the following Saturday, February 18 and Sunday, February 19 at 8 AM each morning.

If you were wanting to make food, donate pop, water, chips, plates, silverware, cups, exc…It will be very appreciated.  Questions or to volunteer contact Nichole at 320-295-1011.

UPDATE

ATTENTION EVERYONE THAT WANTS TO HELP OUT WITH THE TENLEY THOMPSON PROJECT. We have postponed the build until Febuary. Home Depot has offered us as much as they can right now but they are willing to give us more in Febuary. After talking it over with the Thompsons, waiting made the most sense. I will get ahold of everyone as soon as I get the call from Home Depot. They said we should be granted what they are willing to give us the first week in Febuary. Thank you to everyone eager to help and we hope to see all of you in Febuary. Any questions you can call me at 320-295-1011. Have a wonderful Christmas celebrating Jesus with your familys. We will still have an account at Lake Region Bank in New London under “Tenley Thompson Fund”. Donations are so appreciated and are helping Tenley in so many ways. It will help with the garage and any medical equiptment that Tenley is going to start using that insurance wont cover. – Nikki

Tenley’s Story

When Tenley was 13-months-old her parents started noticing she wasn’t meeting her milestones. They brought Tenley to Gillette Children’s Specialty Healthcare for a MRI.  The results showed a small amount of damage to the white matter in her brain. On September 15, she was diagnosed under the umbrella of cerebral palsy. Tenley continued to show regression so the family returned to Gillette Children’s for another MRI.  The second MRI showed a significant increase in the amount of damage to her white matter. On November 11, 2011 at 18-months-old Tenley was diagnosed with Leukodystrophy, a terminal brain disease. She has been given a short life expectancy that the family has chosen not to reveal in order to help them cherish each second instead of watching the clock.

Click here for Tenley’s CaringBridge page.

What is Leukodystrophy?

Leukodystrophy refers to progressive degeneration of the white matter of the brain due to imperfect growth or development of the myelin sheath, the fatty covering that acts as an insulator around nerve fiber. Myelin, which lends its color to the white matter of the brain, is a complex substance made up of at least ten different chemicals. The leukodystrophies are a group of disorders that are caused by genetic defects in how myelin produces or metabolizes these chemicals. Each of the leukodystrophies is the result of a defect in the gene that controls one (and only one) of the chemicals. Specific leukodystrophies include metachromatic leukodystrophy, Krabbé disease, adrenoleukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, Childhood Ataxia with Central Nervous System Hypomyelination or CACH (also known as Vanishing White Matter Disease), Alexander disease, Refsum disease, and cerebrotendinous xanthomatosis. The most common symptom of a leukodystrophy disease is a gradual decline in an infant or child who previously appeared well. Progressive loss may appear in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior. There is often a slowdown in mental and physical development. Symptoms vary according to the specific type of leukodystrophy, and may be difficult to recognize in the early stages of the disease.